Patient Organizations
Below is a non-comprehensive list of patient organizations. Please note that we take no responsibility over content at third party sites.
Would you like your organization to be featured? Contact us at ucare-4u@ga2len.network
Germany
Urtikaria-Helden.de: Information platform for urticaria sufferers group on Facebook. Founded in 2021 with the aim of providing other sufferers with information and sharing experiences so that they can find the right therapy for them more quickly. Today, the group has almost 3,700 members and Urtikaria-Helden.de is a comprehensive information platform about the forms, symptoms and treatment options for urticaria. The patient organisation Urtikaria-Helden gUG, founded by Sabine Bauer in 2023, is supported by the experienced dermatologists and allergists Prof. Dr Staubach-Renz from Mainz University Hospital and Prof. Dr Maurer from the Charité in Berlin.
Urtikaria Netzwerk Berlin Brandenburg
An association of dermatologistst from Berlin and Brandenburg that was founded in 2015. The aim of the network is to improve the care of urticaria patients in Berlin and Brandenburg by promoting intra- and interdisciplinary cooperation between the members providing care for urticaria patients in matters of clinical and care research as well as in education, training and continuing education.
Deutscher Allergie-und Asthmabund (daab)
The German Allergy and Asthma Association (DAAB) was founded in 1897 as Germany’s first patient association. More than 125 years of existence mean 125 years of lived daily dialogue with children and adults suffering from allergies, nutritional problems, respiratory or skin diseases.
Austria
The Austrian Lung Union (ÖLU), founded 1985, is a nationwide active self-help group for people with respiratory diseases (Asthma, COPD, CF, Lung Cancer), skin diseases (Neurodermatitis, Urticaria) and allergies. The ÖLU supports and promotes the maturity of those affected. The goal: Informed patients and an informed society.
Urtikariaverband – your independent patient organisation. Our heart beats for better medical care, an improvement in the healthcare system and the well-being of our patients. Our goal is clear: to bring about changes that sustainably improve the lives of our members and all those affected.
Belgium
Allergienet is a self-help group and advocacy organisation for all people with allergy, (atopy and type2 inflammation). A forum where patients can interact with each other, sharing their experiences and supporting each other where necessary.
Italy
ARCO – Associazione per la Ricerca e la Cura dell’Orticaria
Founded in July 2018 by a group of volunteer patients, ARCO is the first patient association in Italy dedicated to all forms of urticaria, including chronic spontaneous urticaria (CSU).
Switzerland
In Switzerland three million people are affected by some form of allergy and intolerance. aha! Swiss Allergy Centre supports them with information.
Well-informed and advised, these people are finding their way back to greater quality of life. aha! Swiss Allergy Centre supports you on this path
Poland
Fundacja Alabaster, it´s a patient advocacy group based in Poland. They provide educational materials, conferences, meetings, a support line, and workshops for adults, childrens, health care professionals and medical and psychology students. They work with asthma, allergy, eczema, food allergy and urticaria.
Portugal
Associação Portuguesa de Doentes de Urticária
There has never been a Patients’ Association or an associative group dedicated to helping respond to the challenges that Chronic Urticaria represents in Portugal until APUrtica – Portuguese Association of Urticaria Patients, was founded in 2021. It is a non-profit association whose main objective is to support and defend the rights, needs and concerns of people living directly with this disease as well as for those who are indirectly affected by it, family members, friends, employers, etc.
United Kingdom
Allergy Uk´s aim is to raise the profile of allergy at all levels, with a vision for everyone affected by allergy to receive the best possible care and support. They run a dedicated Helpline and offer free Factsheets that provide information that is often badly needed to explain the symptoms and triggers that people with allergy are dealing with every day of their lives. The charity works with government, professional bodies, healthcare professionals and corporates to help improve the lives of the millions of people with allergic disease.
Russia
The Interregional Charitable Public Organization “Skin and Allergic Diseases” is a voluntary association of citizens of the Russian Federation and patients suffering from skin and allergic diseases and other similar diseases for the joint implementation of goals and objectives.
Our mission is to initiate a dialogue between the medical community, government agencies and citizens with chronic skin diseases and allergic conditions to contribute to improving the quality and availability of medical care, so that the “voice” of each patient is heard.
Spain
Asociación de Afectados de Urticaria Crónica
The Association AAUC was founded 2012 and is a non-profit organization that groups together people affected by chronic urticaria with the aim of improving their quality of life.
USA
The mission of Allergy & Asthma Network is to end the needless death and suffering due to asthma, allergies and related conditions through outreach, education, advocacy and research.
At Allergy & Asthma Network, works with national and local partners to train healthcare professionals and hosts events and screenings that reach people directly in their communities. They raise awareness and educate millions each year with easy-to-understand, medically reviewed resources in English and Spanish. The network advocates at the federal and state levels to improve access to care and affordable medications and works to ensure the patient voice is included in research and drug development.
We CU, a U.S-based nonprofit dedicated to empowering and improving the lives of those affected by chronic urticaria.
Hope and Support for Chronic Urticaria
Offering guidance, resources, and a supportive community for those living with chronic urticaria. We see you. Find hope, strength, and a home on your journey with us.
Canada
A group of specialists and patients with chronic urticaria that aims to improve the health and quality of life of people dealing with this disease. This group is aiming to find ways to support the advancement of knowledge and research on chronic urticaria, search for relevant, updated information on chronic urticaria, validate it and make it available. Further, this oganization aims to influence decisions within the medical community, governments and other stakeholders, as well as raise awareness of this condition and inform and train medical staff so they can diagnose correctly and better refer patients to the specialists they need.
Peru
Asociación-Peruana de Pacientes con Urticaria
The Peruvian Association of Patients with Urticaria (APPU), has been formed by a group of patients with Chronic Urticaria to give guidance and support to other patients with this disease. Is a virtual place were patients can share their difficulties and insights, with a global aim of a better quality of life. For this we have a physician advisory board from Peruvian UCARE members.
Colombia
The Association was created on 11 January 2021 and had its first General Assembly with founding members on 2 May 2021.
We are a non-profit association, formed by a group of people with psoriasis and professionals interested in working to provide psychological, occupational and social support to people suffering from psoriasis and other skin diseases in Colombia.
Chile
Padece Foundation (Chronic and Empowered Dermatological Patients) was born in 2022 as the first non-profit foundation in the country, which groups and accompanies patients, diagnosed and seeking a diagnosis, with chronic immune-mediated dermatological diseases, and under the slogan “For a dermatological conscience”, seeks to make visible the high monetary and psychological cost of skin pathologies, as well as the importance of their health care, away from aesthetic or cosmetic considerations.
El Salvador
Association dedicated to providing comprehensive support to patients with Psoriasis in El Salvador
Global
GAAPP, the Global Allergy and Airways Patient Platform has the mission to globally support and empower patients with allergies, airways and atopic diseases by protecting their rights and insisting on the duties of governments, healthcare professionals and the general public.
GAAPP’s vision is to create a world where patients with allergies, airways and atopic diseases live better. We operate based on the values of respect, responsibility, and relationships.
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