About UCARE 4U

Who we are

About GA2LEN

The Global Allergy and Asthma Excellence Network GA2LEN is a Network of Excellence of the leading European clinical and research facilities in the field of allergology and asthma, associated with the European Academy of Allergy and Clinical Immunology (EAACI) and the organization representing European patients with allergies and asthma (EFA). Started under the European Union Sixth Framework Programme for Research, GA2LEN has become a model project in Europe. With its core networks  UCARE, ACARE, ADCARE and ANACARE GA2LEN addresses the growing public health concern of allergic diseases.
You can find more information about the GA2LEN association here

About UCARE

UCARE, Urticaria Centers of Reference and Excellence is a division of GA2LEN, the Global Allergy and Asthma European Network.  The main aims of GA2LEN UCAREs are to provide excellence in urticaria management, to increase the knowledge of urticaria by research and education, and to promote the awareness of urticaria by advocacy activities. Urticaria is a common, debilitating, and often hard to treat condition that can be challenging for both patients and treating physicians, especially when chronic. With more than 160 member centres in 41 countries, GA2LEN’s UCARE network is the biggest and most active consortium of urticariologists and urticaria centres with the biggest global reach to patients affected by Urticaria and its comorbidities.

About UCARE 4U

The GA2LEN UCARE network is a global community of physicians treating urticara. Educating patients on their disease and helping them optimize their treatment is one of their main goals. For this reason, the UCARE 4U program was launched in 2021.

 

 

Our Aim:

  • update patients on recent developments in urticaria
  • help with patient understanding of causes, triggers, comorbidities, and treatment of CU
  • help unite patients and physician efforts to improve the care of patients with CU
  • uphold patient and physician interaction and cooperation.

Our Approach:

The UCARE 4U platform and program will provide patients with information on state-of-the-art disease management, including therapies and strategies to assess the response to treatment. The platform and program will also provide patients with information on where they can get help and establish better links to patient organizations and help to build them where they are none. Finally, the program will inform patients on ongoing research and opportunities to participate in research projects and clinical studies, to further the understanding of urticaria and its treatment.

The UCARE 4U global program and platform is coordinated by a Steering Committee. Each format is managed by a task force that is made up of physicians.

The UCARE 4U and UCARE LevelUp Steering Committee

Alicja Kasperska-Zajac, Poland
Kanokvalai Kulthanan, Thailand
Luis Felipe Chiaverini Ensina, Brazil
Maryam Ali Al-Nesf, Qatar
Mojca Bizjak, Slovenia

Luis Felipe Ensina, Brazil

Iman Nasr, Oman

Désirée Larenas-Linnemann, Mexico

Ana M. Gimenez Arnau, Spain

Emek Kocatürk, Türkiye

 

The UCARE 4U and LevelUp Advisory Board

In addition, an Advisory Board (Adboard) is being formed, whose function will be to give their expert advice on all content, strategic, scientific, ethical, legal, and organizational questions pertaining to UCARE 4U. The Adboard will be made up of a general practitioner, pediatrician, representatives from patient organizations and sponsors and members from the Steering Committee.

The UCARE 4U Advisory Board currently consists of:


Désirée Larenas-Linnemann – LevelUp Steering Committee Representative

Maryam Ali Al-Nesf – UCARE 4U Steering Committee Representative

Elaine Déry – Patient Organization Representative

Monica Albuquerque – Patient Organization Representative

Marco Petrimpol – Sponsor Representative